I got a diagnosis today after trying to figure out what’s wrong with me for twenty years. My grandmother died at a relatively young age of lupus complications and she had to end her whole career at 36 because she was so sick. I’m 27, and I am terrified I’m going to end up like her. Her quality of life was absolutely awful for the entire time I knew her. I don’t want that for myself.

  • LaunchesKayaks@lemmy.worldOP
    8·
    2 months ago

    I was put on hydroxychloroquine a few months ago and it’s great, but having a formal diagnosis now is making it scary.

    • roofuskit@lemmy.world
      5·
      2 months ago

      I’ve been on hydroxochloroquine for over a decade. Other than having to increase the frequency of opthalmologist appointments the longer I’m on it, it’s done nothing but improve my life.