Please consider donating to the Open Medicine Foundation to help people suffering from extremely disabling and underfunded lifelong illnesses with no know treatment.

https://www.omf.ngo

  • 42 Posts
  • 346 Comments
Joined 4 months ago
cake
Cake day: July 17th, 2024

help-circle











  • Thanks for sharing. I have ME/CFS too.

    It’s not even that rare over 2 million people in the US have it, just quite a marginalised illness, mostly because it majoritarily affects women and was therefore blamed on “hysteria” till the 80s. A lot of the medical system still has prejudicicial views towards it.

    A decent chunk of the more severe Long COVID cases fit ME diagnosis criteria, which makes sense, because most ME cases have historically been caused by viral infections.








  • But why would a user for example: @CDRMITTENS@sh.itjust.works who is instance banned from my home instance, have their last posts available to be seen by me from 7 months ago (right before their ban), but if I look at their profile from my LW alt, I can see they have a bunch of newer posts.

    It’s almost like their new posts are “defederated” from my home instance.

    The posts they make are in a federated community with my home instance. I’d bet if they replied to this comment, I wouldn’t see their reply. (assuming this comment is even visible to them).