• SaveTheTuaHawk@lemmy.ca
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    5 days ago

    It will be expensive forever. A similar therapy for SMA children (without surgery) costs US$2.1M. Novartis then gave away doses by lottery. for a few families, they got a dose, for everyone else, their child dies.

    How does Novartis CEO Vasant Narasimhan sleep at night? In a large mansion outside Boston.

    • WolfmanEightySix@piefed.social
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      5 days ago

      Is that the cost, or what people are charged? Like in the USA people are charged an insane figure for insulin, but the product can be made for something like £17.

      • UnderpantsWeevil@lemmy.world
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        5 days ago

        Is that the cost, or what people are charged?

        The latter.

        The therapy isn’t materially cheap, but every point along the line is profiteered on top of the baseline cost.